By Paul W. Power CRC, Arthur E. Dell Orto PhD CRC
To aid households deal with an severe medical-related occasion, energy and Dell Orto suggest family-oriented existence and dwelling viewpoint might be mixed with a relatives intervention philosophy. Stressing acknowledgment of the adversarial results of the disorder and an confirmation method of kin fight and possibilities, the authors discover matters proper to remedy, relations variation, caliber of existence, and kinfolk survival. a special characteristic of the textual content comprises the association of the chapters round thought-provoking own statements via questions/experiential initiatives designed to stimulate concept and dialogue. This e-book is needs to studying for healthiness and allied overall healthiness pros together with physicians, nurses, rehabilitation counselors, social staff, psychologists, and relations advocates and should function an invaluable textbook for professionals-in-training.
Read Online or Download Families Living with Chronic Illness and Disability: Interventions, Challenges, and Opportunities (Springer Series on Rehabilitation) PDF
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Additional resources for Families Living with Chronic Illness and Disability: Interventions, Challenges, and Opportunities (Springer Series on Rehabilitation)
Sample text
Appropriate information to the educator about the young person's medical condition can make a difference in this individual's overall adjustment. Establishing communication links between the family, health professionals, and the school is an important step to helping the child/adolescent manage the medical condition. Again, self-management contributes to the building of self-esteem. FRIENDS AND PEERS Depending on the severity and complexity of the severe disability or illness, family members may overly protect a young person or peers may be overly fascinated by the illness.
Another factor that can affect the impact of the child's illness on the family is the length of time the parents care for a child with a chronic illness (Dahlquist, Czyzewski, & Jones, 1995). A prolonged time of caring can cause a long-term stressor that may increase in intensity. These demands create a difficult time for families, especially those with young children with complicated and long-term life care needs. Understanding complex information related to an illness or disability, being uncertain about the outcome, worrying over the future of the now "less than perfect child," and accommodating lives to the caring needs of the child represent stressors that cause a large burden on the marital relationship.
Because of medical advances, most of these young people will live into adulthood. Though children and adolescents who experience severe illness and disability related traumas have a unique array of adaptive patterns, it is the family who usually must bear the primary care-giving responsibilities. The family is the most important source of support and developmental impetus (Lustig, 2002). The family is also instrumental in achieving a balance between the illness/disability related demands and all the members' quality of life.
